"Break the Silence, Let's Care" — Sickle Cell Disease

Today is World Sickle Cell Day – Precinct Reporter Group News

Sickle cell disease has become a common and foremost genetic disease worldwide which can be cured through the fast awareness campaign, curable activities, early diagnosis and management.

Sickle cell disease is caused by a faulty gene that affects how red blood cells develop.

He spoke on the sidelines of the annual public lecture on Sickle Cell Disorder.

The ministry of Health indicated that 13.5 per cent of our population carries this condition.

The prevalence of the condition varies by region and district. Such unions continue to add to the sickle cell burden in Uganda.

"It is a drug that every sickle cell patient have to take in order to improve the quality of their lives".

These videos, made possible by a grant from Novartis Pharmaceuticals, can be found and shared at http://scdcoalition.org/global."One of the greatest hurdles we face in curbing the heartbreaking rate of mortality caused by sickle cell disease in sub-Saharan Africa is lack of awareness of the condition and the simple, relatively cheap interventions that can save lives". Sickle cell anaemia is seen from childhood.

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A person can not get it through sex or interacting with someone who has it.

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The late Mobb Deep MC was diagnosed with sickle cell disease as an infant, according to Rap-Up. However, these are yet to be effectively replicated in Uganda. As parents, it's our responsibility to request a sickle cell test when our babies have been born. Early diagnosis and treatment saves lives.

After newborn screening, comprehensive care is required to be able to holistically manage and care for people living with sickle cell.

Ezeudu noted that absolute faith in God and awareness remains the best option for management and prevention of sickle cell anaemia, while the best treatment of the disease is nutrition integrated with faith.

Chairman of the NGO, Ejidike Ugochukwu, made the pledge Tuesday in his welcome remarks during the inauguration of the NGO and book launch titled: "Unveiling Sickle Cell Anaemia", held at Orchid Hotel, Asaba.

The event, the organisers said is aimed at creating awareness about sickle cell disorder, its prevention and management for senior secondary school students and residents of the territory. Let us all avoid the stigma and discrimination. It is possible for us as a nation to set a target year for total eradication of sickle cell anemia.


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